Resources
Madison and Ty: Expecting a Terminal Baby
During a routine ultrasound, Madison and Ty found there was something was wrong with their baby boy. When they went to the specialist, they were told their baby’s bladder was large, and his kidneys were covered in cysts and had little to no function- a condition that…
Resources by Topic
Prenatal Resources
How to Tell Family and Friends About a Prenatal Diagnosis
After receiving a prenatal diagnosis of a life-limiting condition, you will be navigating information, decisions, grief, and the inevitable experience of telling your family and friends about the diagnosis and prognosis. The idea of sharing this news and devastating rea…
Resources for Infants, Toddlers & Kids
Erika and Steve: Autism
First signs something was wrong Erika and Steve first noticed something was different with their son Blaise when he was 18 months old. Erika recalled, “He went to daycare and we would go in and notice that all the kids are playing in one area and he’s over to an area…
Caregiver Resources
Erika and Steve: Autism
First signs something was wrong Erika and Steve first noticed something was different with their son Blaise when he was 18 months old. Erika recalled, “He went to daycare and we would go in and notice that all the kids are playing in one area and he’s over to an area…
Resources for Adults with Special Needs
Assistive Technology
Assistive technology is changing the ways people with disabilities can interact in the world around them. The number of students enrolled in a special education setting is increasing each year. One way educators are helping ensure that each student’s individual needs…
Search Diagnosis Resources
Community Stories
Sock Talk
TRAK
TRAK is a specialized ranch that helps connect people with animals and their community. They are located in Tucson Arizona and have been operating for 15 years. Jill and Scott, the founders of TRAK shared their inspiration for starting TRAK. Gerald also was abl…
TRAK
TRAK is a specialized ranch that helps connect people with animals and their community. They are located in Tucson Arizona and have been operating for 15 years. Jill and Scott, the founders of TRAK shared their inspiration for starting TRAK. Gerald also was abl…
Sock Talk: Go Shout Love
In this episode, Gerald talks with Josh Veach, the co-director for Go Shout Love. A cause-driven for-profit business that raises funds and awareness for families on unique medical journeys. Go Shout Love The Formation of Go Shout Love Go Should Love…
Newsletter
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Every four and a half minutes a child is born or diagnosed with a condition parents never dreamed would be their reality. If this is you, you’re in the right place. You’re not alone.
December 2020 Newsletter
When I started Orange Socks, I wasn’t aware of the impact it would have. Not only on others, but on myself as well. I have been incredibly blessed to have this opportunity to meet so many parents and siblings who, like you, have someone in their life who has a…
November 2020 Newsletter
With the season of holidays approaching, I wanted to touch on something that I think is very pertinent during this time. In my interview with Amy Jandrisevits I mention how ignoring differences isn’t how parents want you to respond to their child who has a…
October 2020 Newsletter
Trying to get your kids to wear a mask is hard enough, but adding a sensory sensitivity makes it even more difficult. Sesame Workshop, a nonprofit whose mission is “helping kids everywhere grow smarter, stronger, and kinder,” is working to help that. If you…