Orange Socks Stories
Changing Minds and Inspiring Life
Katherine and Jeff: Ellis-Van Creveld Syndrome- Follow Up
Both of their daughters were diagnosed in utero with a fatal form of Dwarfism. They chose to continue with the pregnancy, and doctors couldn’t give them statistics, because everyone else they knew that received the same diagnosis chose to abort.
Sarah and Jeremy: Down Syndrome Adoption
While looking through adoption files from an orphanage in Yerevan Armenia, Sarah saw a picture of Maria, who has Down syndrome. Sarah told us, ” I saw Maria’s face, and I had seen many other faces over the years, and they are always just so cute and you want to adopt them all, but something was very different when I saw Maria’s face. It’s like God told me, “that’s your daughter, go get her!”
Morgan and Rikki: NONO Gene Deletion
There’s only a handful of kids who have been diagnosed with NONO gene deletion. Doctors can’t tell you what your life will be like, Morgan and Rikki can.
Tamara and Matthew: Down Syndrome Follow Up 1 Year Later
There were suspicions in utero that their baby would have Down syndrome, but they didn’t know for sure until he was point. After a lot of study and then ultimately meeting their son with Down syndrome, they have decided Grayson is perfect the way he was born.
Jennifer and James: Adoption of 4 Children with Disabilities
Jennifer and James have a very unique family, they have 10 children! 6 of them have been adopted and 4 or those adopted have disabilities. They each have brought love and joy into their family. Internationally Adopted Children with Disabilities The Unexpected...
Rebekah and Chris: Achondroplasia (Dwarfism)
Rebekah and Chris have Achondroplasia, a form of Dwarfism. They have 2 children, one that has Dwarfism, and one that does not. Rebekah and Chris open up about what it’s like living as a little person, and how they feel now that they have a daughter with the same condition. Rebekah is a great resource to parents who receive a Dwarfism diagnosis for their child.
Amanda: Pfeiffer Syndrome
Having a child with Pfeiffer syndrome comes with it’s challenges. You will discover, however, these kids are just like any other, they just look different.
Valerie and David: Down Syndrome
Typical of that time era, David and his wife were encouraged to place their daughter, Sharmi, who had Down syndrome in a state institution. They chose to keep Sharmi at home. A decision David is grateful for. Sharmi’s sister, Valerie, eventually became her...
Gwen: Asparagine Synthetase Deficiency
Gwen is the mother of Claire and Lola, teenagers with asparagine synthetase deficiency or ASNS. Both Claire and Lola have microcephaly as a result of ASNS. Despite this, they have filled their family and community with love. Finding Happiness and Joy The...
Kassy and Darren: 7 Q Chromosome Deletion
Kenai is truly one of a kind. With only a handful of people in the world diagnosed with 7Q deletion, he is paving the way and proving doctors wrong. His parents, Kassy and Darren, share what a joy he’s been to their family and how they are helping him grow...
Nicole and Adam: Spina Bifida
Piper is a vivacious little girl with spina bifida. She surpassed the doctors’ expectations even before she was born in an in utero surgery. High-Risk Surgery Before She Was Born “I Had a Feeling that Something Wasn’t Right” During her 16 week...
Caitlin and Dallin: Spinal Muscular Atrophy
Auni lived a short life due to Spinal Muscular Atrophy. Despite this, she made a lasting impact on her parents and all who knew her.
Christie: Adopted 35 Children
Christie and her husband built their family by adopting special needs children, 26 of them to be exact. Special needs children bring such joy into a home.
Alie and Tyler: Asperger’s Syndrome, Anencephaly and Albinism
Alie and Tyler have an extremely unique family. They have three children, all who have different disabilities. Jack has Asperger’s, Amelia was diagnosed with anencephaly and died two days after she was born, and Owen has albinism and is legally...
Tiffany and TJ: Down Syndrome
Austin is a six year old boy who has Down syndrome. His parents, Tiffany and TJ, share what a joy he is in their lives and to their families. Tiffany and TJ are heavily involved in their local Down syndrome association which brings awareness and inclusion...
Georgia and Nick: Autism
Georgia and Nick first started noticing signs their son Lincoln was regressing developmentally. After getting diagnosed with Autism Spectrum Disorder, they share their joys and struggles coming to terms with his diagnosis. Winning the Lottery “That was the...
Stephanie and Andy: Anencephaly
Doctors told Stephanie and Andy, their unborn child had anencephaly and wouldn’t make it to birth. Grace impacted many in her 10 hrs and 32 min of life.
Cora and Trey: Rett Syndrome
Cora and Tray were relieved once their girls were finally diagnosed with Rett syndrome. Now that they had a diagnosis, a game plan could be made.
Sandra: ADNP Syndrome
It took six years for Sandra to receive a diagnosis for her son Tony. He was diagnosed with ADNP syndrome and was the 11th person to be diagnosed. With little information available, Sandra set out to create more awareness for her son’s extremely rare...
Jessica and Johnny: Goldenhar Syndrome
Griffin is a young boy with Goldenhar syndrome. He is proud of who he is! His positive attitude helps his parents not view his diagnosis as a bad thing.
Jessie and Nathan: DiGeorge Syndrome
Baby Ammon was diagnosed with DiGeorge syndrome and numerous other abnormalities. His parents are grateful he is here despite the difficulties.